"EB update # 3"...

Thanks be to God that the new antibiotics and breathing treatments seem to be helping our boy!  It was a rough 14 days, but I do believe that he is turning a corner now. This is by far, the sickest he has ever been. Still praying that it has just been a rough year for him, but I am going to press doctors for answers as to why he has been this sick. He will most likely be referred to an ENT and a Pediatric Pulminologist in the near future. He returns for a 3rd chest x-ray tomorrow and blood work, and we are praying that they will reveal that improvement is indeed taking place. It appears that it is, as his coughing has diminished tremendously, fever gone, energy returning, eating normally again, and sleeping peacefully at night again without waking up with frightening respiratory distress. If it doesn't reveal improvement, I will be shocked. I will update tomorrow.